Discussion about this post

User's avatar
Amy - The Tonic's avatar

Great post with lots to chew on, Amber. I would describe fatigue as feeling like your whole being has a block of concrete tethered to it. Yikes, 13 words!

What have I been meaning to do but haven’t gotten to? I have my toe dipped in several things right now and each day I assess my available energy, after chores and exercises are done, to get a little bit done on one of the “things”. As a result, I’m making progress on all of them, albeit slowly. I am learning to reside in this space, after decades of destructive perfectionism and achievement. It’s a bizarre feeling and sometimes I get pulled back toward my old ways, but I work at resisting.

Did I ever tell you that my ME/CFS doc once asked if I had a history of chronic migraines (yes) and endometriosis (also yes), because indeed there is some connection? Your mention of the conference reminded me of this.

Expand full comment
Amber Horrox's avatar

I love how you describe previously drowning in the loud symptoms to living with (mostly) quiet symptoms. When you share with me your approach to endo research combined with where you are now, it makes me think about all you’ve got to share and offer others in the community. They would really benefit from what you’ve learned. It’s a real skill and talent to be able to understand such a complex disease and meet the needs your body has in a minefield of contradictory information.

Great point about fatigue!

Expand full comment
9 more comments...

No posts