Great post with lots to chew on, Amber. I would describe fatigue as feeling like your whole being has a block of concrete tethered to it. Yikes, 13 words!
What have I been meaning to do but haven’t gotten to? I have my toe dipped in several things right now and each day I assess my available energy, after chores and exercises are done, to get a little bit done on one of the “things”. As a result, I’m making progress on all of them, albeit slowly. I am learning to reside in this space, after decades of destructive perfectionism and achievement. It’s a bizarre feeling and sometimes I get pulled back toward my old ways, but I work at resisting.
Did I ever tell you that my ME/CFS doc once asked if I had a history of chronic migraines (yes) and endometriosis (also yes), because indeed there is some connection? Your mention of the conference reminded me of this.
I love how you describe previously drowning in the loud symptoms to living with (mostly) quiet symptoms. When you share with me your approach to endo research combined with where you are now, it makes me think about all you’ve got to share and offer others in the community. They would really benefit from what you’ve learned. It’s a real skill and talent to be able to understand such a complex disease and meet the needs your body has in a minefield of contradictory information.
When you ask your body what it needs, what does it respond with? My body is screaming out for rest and sleep 😴 To slow down and just be.
What research into your condition have you found beneficial? How has this improved your health/ability to advocate? I went deep dive into my condition and it’s taken me from drowning in very loud symptoms to living most of the time with very quite symptoms. It’s been huge in my journey. I consider myself a mini expert on endo.
Do you believe there is an easier way to live and be? Big questions and conversations coming up in our house, you channeled big changes from my body, by our chats I can feel them coming!
Freedom, sustainability and balance are my 3 main values. What are your top 3 values? I have no idea and I need to ponder it. Being environmentally conscious is one, this fits in to both my health and the world around me (no chemicals, natural products at home, recycling, trying to buy organic more, buying local, trying to eat local produce…).
Using ten words or so, how would you describe fatigue? Fatigue is a tiredness that doesn’t lift with rest or sleep. (11 does that count? Haha).
What have you been meaning to get round to for ages but still haven’t had a go at? I’ve a list as long as my arm, but rest has taken priority.
Great post with lots to chew on, Amber. I would describe fatigue as feeling like your whole being has a block of concrete tethered to it. Yikes, 13 words!
What have I been meaning to do but haven’t gotten to? I have my toe dipped in several things right now and each day I assess my available energy, after chores and exercises are done, to get a little bit done on one of the “things”. As a result, I’m making progress on all of them, albeit slowly. I am learning to reside in this space, after decades of destructive perfectionism and achievement. It’s a bizarre feeling and sometimes I get pulled back toward my old ways, but I work at resisting.
Did I ever tell you that my ME/CFS doc once asked if I had a history of chronic migraines (yes) and endometriosis (also yes), because indeed there is some connection? Your mention of the conference reminded me of this.
I love how you describe previously drowning in the loud symptoms to living with (mostly) quiet symptoms. When you share with me your approach to endo research combined with where you are now, it makes me think about all you’ve got to share and offer others in the community. They would really benefit from what you’ve learned. It’s a real skill and talent to be able to understand such a complex disease and meet the needs your body has in a minefield of contradictory information.
Great point about fatigue!
When you ask your body what it needs, what does it respond with? My body is screaming out for rest and sleep 😴 To slow down and just be.
What research into your condition have you found beneficial? How has this improved your health/ability to advocate? I went deep dive into my condition and it’s taken me from drowning in very loud symptoms to living most of the time with very quite symptoms. It’s been huge in my journey. I consider myself a mini expert on endo.
Do you believe there is an easier way to live and be? Big questions and conversations coming up in our house, you channeled big changes from my body, by our chats I can feel them coming!
Freedom, sustainability and balance are my 3 main values. What are your top 3 values? I have no idea and I need to ponder it. Being environmentally conscious is one, this fits in to both my health and the world around me (no chemicals, natural products at home, recycling, trying to buy organic more, buying local, trying to eat local produce…).
Using ten words or so, how would you describe fatigue? Fatigue is a tiredness that doesn’t lift with rest or sleep. (11 does that count? Haha).
What have you been meaning to get round to for ages but still haven’t had a go at? I’ve a list as long as my arm, but rest has taken priority.