7 decades, wow! It is incredibly challenging to untangle what you want from all that you articulate so well. And then to face all that we do even if you get that far. I’ve long since wanted to write a post about cure but the words have not yet flowed. It’s not that I don’t believe in them, it’s the carrot that’s dangled that’s the journey I didn’t want to take. It felt less risky to go off into the unknown all alone and learn to trust in something else.
Absolutely profound wisdom, especially in summarising the journey as the hero's journey and the rite of passage, because no two people are facing exactly the same challenges, even with the same dis-ease name. Since it's a rite of passage that must be undertaken alone, it solely relies on our intuition and the inner guidance from our source of faith/belief system (or the lack thereof like you mentioned) to walk that lonely path. But as I mentioned to another friend, it's also a collectivist journey, in a way you and me converse here sharing our lessons and empathising with a greater audience of fellow warriors. Truly an empowering and eye-opening walk.
Argh I love this and your top 10 tips. I'm not sure I would have fully understood what you were trying to say just a year ago. But in the past few months, on my own healing journey, I'm really beginning to understand now the importance of each step. At the moment I'm working in particular on self acceptance. Before it sounded like a nice thing to do, oh wouldn't it be lovely to accept myself as I am. I thought of it as something that would sort itself out once I felt better, or got that job, or looked or acted a certain way, or someone else told me I could. But you really have to accept yourself as you are, now, with all the 'mess' of being human. I understand now (with the help of therapy and stories such as yours), that I need to identify my core values and needs, and then put boundaries in place to be able to stick to these values/needs. To know that I am worthy of having needs and this doesn't make me a bad or selfish person. This has been incredibly important for both my mind, body and spirit to all align with each other. I know it will take ongoing work, but I get it now. And I love that you acknowledge we all have our own journeys to undertake. You don't tell people what to do, but guide them to make their own discoveries. Please keep doing what you're doing. Its been incredibly beneficial to me to read your articles 🥰
Yippeeeeeeeeee this means the world to me to know that this has landed and I am speaking a language that others understand and can comprehend !!!!
I’ve had a few people say to me that they will start the work once they feel better, that it will all happen then but it starts now. And I get that it is so difficult and tough and enormously challenging (I’ve done it), but there really is no other way that I’ve found. (Like I said there are no doubt other ways but this is the one that I feel so many more will benefit from than we’ve been led to believe and whilst it won’t be for everyone - I’m not for everyone - it will lead to a surge in recovery and that is what I am here for.
It took for me to be completely disabled by illness to identify that I had needs and it became imperative that I prioritise them. My health depended on it. And I realised I was nothing to anyone else without those needs being met.
Thank you for encouraging me to continue, it really means a great deal. This is me only just getting started. I have all my books with these messages in which are designed exactly to help guide others towards making their own discoveries (I love how you termed that). It’s been a massive evolution for me as a human being even just to write and process all this so that this could eventually come out. Something else to add to my celebration list I’ve written this afternoon 🥳
It is 70 years that I have lived with my own singular manifestations of physical and mental malfunction. From that perspective I have found that the he toughest thing to untangle is what I want, distinct from the maze of should wants that clutter my genetics and personal experiences.
The memetic desires instilled in me by a culture that I do longer identify with: nor am I allowed to. The generational trauma we all experience as “chronic” outsiders, combined with the intergenerational trauma we carry genetically, contributing to our health susceptibilities. Resulting in a lack of resilience to a world filled with toxins.
No one can figure it out for you, so I can only suggest beware of the cures for profit out there. Generally speaking, we are not one size fits all.
Thank you🙏 I am super proud of myself and excited for what’s to come on the back of me getting this far. I really do believe a load of are here to metaphorically build the boats to send back across the seas of the open and expansive waters so that we can start making this trip easier for others.
💯 I will be there with my boat to throw them a ring. The ring might be enough for some people, others may scream in my face. Having clarity on those who I’m here to serve is - at long last - helping immensely with this.
I’m here to serve those who live with chronic illness who are in some way waking up to what they know to be true. It may not count for a lot right now but my vision tells me it will in the future.
Probably like yourself, I’ve done a lot of work around this. It really is a small minority of people we are here to serve (not the whole pool). It was once a massive surprise that people who find themselves in my situation don’t overcome what I have. I’ve already been told once (in a loving caring way) that noone will read my books because I’m not medically trained.
I’ve recently connected with a fantastic neurologist who believes in an integrative approach and full holistic care to accompany the medical side. And only 1/10 patients has an interest in what she has to say. So I’ve now come to surmise that when I receive the inevitable “but you’re not qualified” it isn’t anything much other than another block to their own healing.
I was also really shocked that this neurologist had the same fears over going public with what she knows to be true about healing than I have. It’s really helped me to connect that there is way more to the road to recovery (and all its obstacles and barriers) than learning about it from someone who is medically trained or not.
It has take me YEARS to dig to the deepest depths to uncover this insight. An enormous amount of pain and suffering on my part. I don’t want to sound so cliche as to say it was all worth it but for it to serve a purpose and for what I’ve lived through and endured to land with others brings so much meaning and depth to what I’ve experienced. And to know that it lands with others is enormous, it took me years to write these 3 posts. Thank you so much for being open to receiving such insight 🙏 (I’ve been ill and had tweaks to make to this scheduled post which included tagging the other two posts and adding a tiny bit extra blurb but I’ll have to let that go for now whilst I recover from the last few days).
I’m so happy to hear how much progress you’ve made - it truly IS a hero’s journey! Reducing inflammation is something I’ve put a huge amount of effort into. It’s not easy and I find that most doctors won’t instruct you how to do it at ALL - yet every incremental step you take to lower the overall burden is huge for health and wellness.
I wish that was something that was taught more to chronic illness patients - especially since pain and inflammation are so intrinsically linked.
It blew my mind that this wasn’t recognised and acknowledged in the medical field when I found out🤯
Inflammatory disease? Reduce inflammation.
Root cause linked to an “inability to regulate emotions”? Learn to regulate emotions. To me, I don’t get what there isn’t to understand. How this is not blatantly obvious.
I don’t get it. I never will.
Being told there was no support available to me at all within the NHS was brutal at the time. But now I look back, it was a blessing in disguise - it meant I could work all this out myself and not be goaded into all the misinformation, misguidance and limiting opinions and advise that is rife when it comes to chronic illness.
I haven’t seen a “specialist” or anyone medically since 2019. It’s saved me a lot continued and repeated trauma.
Whilst this isn’t an avenue I in any way advocate; learning to let your body lead, getting clear on what it is you want and most importantly, need, is.
"Drown out the noise and tune into what you know to be true." So brilliant to have your tips and reflections as guidance. I am so pleased that I found your boat out on this turbulent sea. X
🥲🥰🙏 it’s the first 2 parts that reduce all the conflict ! It is of course challenging when the noise (and it will) bellows in from time to time. But tuning in to what you know to be true will also help you connect to your empowering beliefs such as “I matter. My health matters” and this does help deal with the inevitable challenge.
7 decades, wow! It is incredibly challenging to untangle what you want from all that you articulate so well. And then to face all that we do even if you get that far. I’ve long since wanted to write a post about cure but the words have not yet flowed. It’s not that I don’t believe in them, it’s the carrot that’s dangled that’s the journey I didn’t want to take. It felt less risky to go off into the unknown all alone and learn to trust in something else.
Absolutely profound wisdom, especially in summarising the journey as the hero's journey and the rite of passage, because no two people are facing exactly the same challenges, even with the same dis-ease name. Since it's a rite of passage that must be undertaken alone, it solely relies on our intuition and the inner guidance from our source of faith/belief system (or the lack thereof like you mentioned) to walk that lonely path. But as I mentioned to another friend, it's also a collectivist journey, in a way you and me converse here sharing our lessons and empathising with a greater audience of fellow warriors. Truly an empowering and eye-opening walk.
Great insight and reflections - very well said !
Argh I love this and your top 10 tips. I'm not sure I would have fully understood what you were trying to say just a year ago. But in the past few months, on my own healing journey, I'm really beginning to understand now the importance of each step. At the moment I'm working in particular on self acceptance. Before it sounded like a nice thing to do, oh wouldn't it be lovely to accept myself as I am. I thought of it as something that would sort itself out once I felt better, or got that job, or looked or acted a certain way, or someone else told me I could. But you really have to accept yourself as you are, now, with all the 'mess' of being human. I understand now (with the help of therapy and stories such as yours), that I need to identify my core values and needs, and then put boundaries in place to be able to stick to these values/needs. To know that I am worthy of having needs and this doesn't make me a bad or selfish person. This has been incredibly important for both my mind, body and spirit to all align with each other. I know it will take ongoing work, but I get it now. And I love that you acknowledge we all have our own journeys to undertake. You don't tell people what to do, but guide them to make their own discoveries. Please keep doing what you're doing. Its been incredibly beneficial to me to read your articles 🥰
Yippeeeeeeeeee this means the world to me to know that this has landed and I am speaking a language that others understand and can comprehend !!!!
I’ve had a few people say to me that they will start the work once they feel better, that it will all happen then but it starts now. And I get that it is so difficult and tough and enormously challenging (I’ve done it), but there really is no other way that I’ve found. (Like I said there are no doubt other ways but this is the one that I feel so many more will benefit from than we’ve been led to believe and whilst it won’t be for everyone - I’m not for everyone - it will lead to a surge in recovery and that is what I am here for.
It took for me to be completely disabled by illness to identify that I had needs and it became imperative that I prioritise them. My health depended on it. And I realised I was nothing to anyone else without those needs being met.
Thank you for encouraging me to continue, it really means a great deal. This is me only just getting started. I have all my books with these messages in which are designed exactly to help guide others towards making their own discoveries (I love how you termed that). It’s been a massive evolution for me as a human being even just to write and process all this so that this could eventually come out. Something else to add to my celebration list I’ve written this afternoon 🥳
🥰
It is 70 years that I have lived with my own singular manifestations of physical and mental malfunction. From that perspective I have found that the he toughest thing to untangle is what I want, distinct from the maze of should wants that clutter my genetics and personal experiences.
The memetic desires instilled in me by a culture that I do longer identify with: nor am I allowed to. The generational trauma we all experience as “chronic” outsiders, combined with the intergenerational trauma we carry genetically, contributing to our health susceptibilities. Resulting in a lack of resilience to a world filled with toxins.
No one can figure it out for you, so I can only suggest beware of the cures for profit out there. Generally speaking, we are not one size fits all.
Fly your freak flags high.
And, first do no harm.
Beautifully said, my friend 💛
Thank you🙏 I am super proud of myself and excited for what’s to come on the back of me getting this far. I really do believe a load of are here to metaphorically build the boats to send back across the seas of the open and expansive waters so that we can start making this trip easier for others.
I agree, though many do and will still choose to wait for that boat with an MD as captain. We can only lead a horse to water…
💯 I will be there with my boat to throw them a ring. The ring might be enough for some people, others may scream in my face. Having clarity on those who I’m here to serve is - at long last - helping immensely with this.
I’m here to serve those who live with chronic illness who are in some way waking up to what they know to be true. It may not count for a lot right now but my vision tells me it will in the future.
Absolutely - we will never be for everyone, but for some, we will be everything 🤗
Probably like yourself, I’ve done a lot of work around this. It really is a small minority of people we are here to serve (not the whole pool). It was once a massive surprise that people who find themselves in my situation don’t overcome what I have. I’ve already been told once (in a loving caring way) that noone will read my books because I’m not medically trained.
I’ve recently connected with a fantastic neurologist who believes in an integrative approach and full holistic care to accompany the medical side. And only 1/10 patients has an interest in what she has to say. So I’ve now come to surmise that when I receive the inevitable “but you’re not qualified” it isn’t anything much other than another block to their own healing.
I was also really shocked that this neurologist had the same fears over going public with what she knows to be true about healing than I have. It’s really helped me to connect that there is way more to the road to recovery (and all its obstacles and barriers) than learning about it from someone who is medically trained or not.
Not read your earlier pieces amber, but your words really struck a chord with me at so many levels, thank you for sharing
🙏🙏🙏 thank you thank you thank you
It has take me YEARS to dig to the deepest depths to uncover this insight. An enormous amount of pain and suffering on my part. I don’t want to sound so cliche as to say it was all worth it but for it to serve a purpose and for what I’ve lived through and endured to land with others brings so much meaning and depth to what I’ve experienced. And to know that it lands with others is enormous, it took me years to write these 3 posts. Thank you so much for being open to receiving such insight 🙏 (I’ve been ill and had tweaks to make to this scheduled post which included tagging the other two posts and adding a tiny bit extra blurb but I’ll have to let that go for now whilst I recover from the last few days).
I’m so happy to hear how much progress you’ve made - it truly IS a hero’s journey! Reducing inflammation is something I’ve put a huge amount of effort into. It’s not easy and I find that most doctors won’t instruct you how to do it at ALL - yet every incremental step you take to lower the overall burden is huge for health and wellness.
I wish that was something that was taught more to chronic illness patients - especially since pain and inflammation are so intrinsically linked.
THANK YOU🙏✨
It blew my mind that this wasn’t recognised and acknowledged in the medical field when I found out🤯
Inflammatory disease? Reduce inflammation.
Root cause linked to an “inability to regulate emotions”? Learn to regulate emotions. To me, I don’t get what there isn’t to understand. How this is not blatantly obvious.
I don’t get it. I never will.
Being told there was no support available to me at all within the NHS was brutal at the time. But now I look back, it was a blessing in disguise - it meant I could work all this out myself and not be goaded into all the misinformation, misguidance and limiting opinions and advise that is rife when it comes to chronic illness.
I haven’t seen a “specialist” or anyone medically since 2019. It’s saved me a lot continued and repeated trauma.
Whilst this isn’t an avenue I in any way advocate; learning to let your body lead, getting clear on what it is you want and most importantly, need, is.
"Drown out the noise and tune into what you know to be true." So brilliant to have your tips and reflections as guidance. I am so pleased that I found your boat out on this turbulent sea. X
🥲🥰🙏 it’s the first 2 parts that reduce all the conflict ! It is of course challenging when the noise (and it will) bellows in from time to time. But tuning in to what you know to be true will also help you connect to your empowering beliefs such as “I matter. My health matters” and this does help deal with the inevitable challenge.