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Chloë Jones's avatar

I have Miranda Hart's book as well. Maybe we clukd read it together? I find reading patient stories triggering as I still like to "pretend' to myself that I am not chronically ill. But I can really see from your words how helpful they can actually be

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Chloë Jones's avatar

Also really want to read your book!

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Amber Horrox's avatar

Yes! Let’s do it😍

Thanks so much for being so honest about this 🙏

It’s an aspect I’ve wanted to see talked about but not sure how to broach it.

The book All in My Head triggered me deeply, I was so angry reading the last half. I’ve spent years researching migraine disease and understand more about it than most neurologists. Only to find that this research has been available for several decades. And we’ve chosen not to educate on it.

The migraine trust is aware that migraine patients (generally speaking) don’t want to hear stories about other patients who’ve improved their health. Simultaneously we have an entire medical system who feels the same way.

How do we bridge the gap?

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Chloë Jones's avatar

It does feel so bizarre that people don't want to read about recovery. For me often I don't want to read about how bad things could possibly get which is weird. Or I feel like by reading things they will happen to me - the more J delve into my thoughts and feelings, the more I realise I have health anxiety of epic proportions! Also there's something about feeling what the author is going through that is so unbearable.

I could never read those biographies of children who had been abused in some way or about murderers, I find them too painful and overwhelming. If I am very honest and this is very difficult to say... I think there is a part of me that is resentful of other people's recovery, like it's not fair they recovered and I can't or that feels like I will never be able to put the steps in place to get there. Yesterday my bodyworker told me she thinks I massively self-sabotage and let my doom thoughts get in the way if my healing. I have been told that all my life, I am too negative but not sure it helps. Lots of food for thought here. I would love to be different xx

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RG she/her's avatar

Thanks Amber! I've just finished Miranda Hart's one and its very good, very honest, and very inspirational. She is so down to earth and real, it's so heartening.

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Amber Horrox's avatar

So good to hear another uplifting review for this one and to sense it being received in the way I’m positive she intended. Thanks for stopping by to share.

One thing I think can be overlooked is that you don’t put yourself through the writing of your own story without the best intentions of others at heart.

Though I know from my own experience, even the most light hearted, uplifting messages can be enormously triggering.

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Migraine Girl 🧠's avatar

Such an awesome series! Thanks for all of the great reading suggestions.

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Amber Horrox's avatar

Thank you🙏 I’m glad it’s going down well, it’s helpful to know. It can be so triggering to talk about and research this kind of material so I’m always mindful of that🙃

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Eva Lydon 🌺's avatar

Aw, thanks for including my little review of Miranda's book Amber 🙏 It melts my heart to see it spreading and reaching the right people 🫠❤️

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Amber Horrox's avatar

You’re the only person that’s made me want to read it so far 😆

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