Thank you for this post, Amber. I have probably told you this, but three years ago, toward the beginning of my LC and ME/CFS journey, my infectious disease doc - a longtime ME specialist - asked me if I had a history of migraines and/or endometriosis. A big yes to both - twice yearly migraines with aura from age 16-35, chronic migraines from 35-43, and severe endometriosis which I had surgery for at age 30 and which contributed to my infertility. She said there’s a connection. So the top specialists all know this and now we do too. Since ME is considered a neuroimmune disease, the migraine connection seems quite likely. The endometriosis seems more hormone related and connected to why women are more affected than men. But they all could be connected by the hormonal and immune differences (women’s immune systems are stronger than men’s, which could explain why they go extra haywire sometimes after a viral infection).
You’re welcome. And gosh I’m so sorry to hear that you have been living with endometriosis to the point of infertility, migraine to the point of being chronic for so long and then the long Covid you are now continually adjusting your way through and recovering from. My goodness, that is a lot.
You’ve helped me see a bigger picture now with what you say about the world’s top specialists understanding that so much is connected. And now here we are too, educated and aware ourselves. Making big headway in bridging the gap between the complex and the misunderstood. I feel hopeful that together we will achieve this and awareness will be raised. Empowering more and more to educate themselves and understand they too have a much higher than a hope in hells chance of recovery.
Btw, rebalancing my hormones has been one of the biggies to add to all the other healing I’ve done (like nostril breathing, reducing inflammation, emotional regulation etc). Not sure if you’ve read this one but this is my theory on why chronic illness is so prevalent in women:
Thank you for this post, Amber. I have probably told you this, but three years ago, toward the beginning of my LC and ME/CFS journey, my infectious disease doc - a longtime ME specialist - asked me if I had a history of migraines and/or endometriosis. A big yes to both - twice yearly migraines with aura from age 16-35, chronic migraines from 35-43, and severe endometriosis which I had surgery for at age 30 and which contributed to my infertility. She said there’s a connection. So the top specialists all know this and now we do too. Since ME is considered a neuroimmune disease, the migraine connection seems quite likely. The endometriosis seems more hormone related and connected to why women are more affected than men. But they all could be connected by the hormonal and immune differences (women’s immune systems are stronger than men’s, which could explain why they go extra haywire sometimes after a viral infection).
Can you share about your work with Dave
You’re welcome. And gosh I’m so sorry to hear that you have been living with endometriosis to the point of infertility, migraine to the point of being chronic for so long and then the long Covid you are now continually adjusting your way through and recovering from. My goodness, that is a lot.
You’ve helped me see a bigger picture now with what you say about the world’s top specialists understanding that so much is connected. And now here we are too, educated and aware ourselves. Making big headway in bridging the gap between the complex and the misunderstood. I feel hopeful that together we will achieve this and awareness will be raised. Empowering more and more to educate themselves and understand they too have a much higher than a hope in hells chance of recovery.
Btw, rebalancing my hormones has been one of the biggies to add to all the other healing I’ve done (like nostril breathing, reducing inflammation, emotional regulation etc). Not sure if you’ve read this one but this is my theory on why chronic illness is so prevalent in women:
https://open.substack.com/pub/warriorwithin/p/friday-13th-superstition-and-bad?r=1fqnxh&utm_medium=ios